I have decided to walk in the Silver Springs, Maryland walkathon to raise money for the Tuberous Sclerosis Alliance on September 18. I have never been one to ask friends and family for money to donate to any specific cause. However, since Anna has been diagnosed with Tuberous Sclerosis (TSC) our lives have turned in a different direction than I ever thought possible.
Jay and I have immersed ourselves in learning more about TSC and how it will continue to effect our lives forever. We have learned that the Tuberous Sclerosis Alliance is the main organization that promotes research and education for this disease. It is research that was conducted through the Tuberous Sclerosis Alliance that allowed for the drug vigabatrin to be approved by the FDA in 2009. Vigabatrin is the drug that Anna is currently taking that has stopped her infantile spasms and allowed us to have hope for a normal future for her.
Our family now has a cause to support and advocate for. A cause that has already influenced Anna's care and will continue to for the rest of her life. I am extremely humbled to see that I have already raised almost $600 in just one day!! I can't thank our friends and family enough for their generous donations and hope you know how much we truly appreciate it! Please visit the link below if you would like to donate. Thank you so much!
www.firstgiving.com/fundraiser/keridavis/stepforwardtocuretsc-silverspringmd
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