Grandma and Grandpa were in town to help celebrate and we had a relaxing and fun day. No big parties this year, and no big outing or surprise, but she had a super fun day filled with all sorts of things that brought a smile to her face. She woke up with balloons all over the floor of her bedroom to surprise her and a house decorated in Ariel decorations - her very favorite.
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| So happy to see balloons everywhere |
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| Anna in all out meltdown mode because she didn't have any presents |
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| Emma excited to open her morning gifts. Notice Anna's legs sticking out in the background. She was still crying. |
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| How old are you? |
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| Sister love |
After breakfast Grandma, Emma, and I had a pedicure together (since it was mother's day too, we thought it would be fun to all celebrate together:). The the three of us had lunch at Emma's favorite restaurant Jason's Deli. We went back home and enjoyed an afternoon in the pool. The girls had a blast finally getting into the pool. It was only 69 degrees and a bit cold for mom so dad got the job of playing with them in the cold water.
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| Of course Emma had to play with all of her mermaids. |
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Emma picked an ice cream cake this year and it was YUMMY! |
She had a great birthday and received tons of wonderful gifts. She is one lucky girl and we are two lucky parents to have such a loving, beautiful, vivacious daughter. We are so proud of how caring and smart she is! We tried to get a cute picture of the girls with grandma and grandpa before they left and this is what most looked like:
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| Anna loves to exaggerate her "cheeeese" |
A few fun facts about Emma at 5:
Favorite color: purple
What she wants to be when she grows up: Consistently answers either a mermaid or a veterinarian
Is in the 65th percentile for height and weight
Favorite princess: Ariel
Although she still loves her princesses she might be turning the corner towards Barbie - she LOVES her new barbies and barbie movies
Favorite movie today (changes weekly): Barbie Mermaidia
Loves playing outside - watering flowers, bubbles, "painting" the driveway, playground, and swimming
Hates: Socks. Princesses don't wear socks and she doesn't ever want to either.
On an unrelated note we traveled to Houston earlier this week to meet all of Anna's new specialists. It was a very long day and we met with many of the doctors from the TSC clinic at UT Childrens Hospital including the genetecist, nephrologist, and neurologist. Overall, we were impressed with her new doctors and feel like she is in good hands. Anna got great reviews from all of them. She then had a kidney ultrasound and we received the results from her blood work that all showed her kidneys are working great! Yay Anna! She does have multiple cysts and AML's (fatty tissue areas) in each kidney that need to be closely monitored. At this point we will follow up with the neurologist every 6 months and nephrologist every year. The next big step for us will be in August when we go back to Boston to complete our study at Boston Childrens Hospital and she has an MRI to monitor the nodules in her brain. We keep praying that those don't grow!
Anna has had some type of virus this week that has been horrible. Today was day 4 with a fever. She finally seemed to be feeling better today with a low temp of 100. Earlier in the week it was much higher, up to 105, and mom was a nervous wreck pacing the house. I was sleeping in her room with her just because I wanted to keep a close eye on her. With the high temps I am so nervous that she could have a seizure. The doctor said the fever should only last up to 5 days. I will feel better if tomorrow she kicks the low fever for good! We have exciting plans this week that I will reveal in a later post. I don't want her fever to keep us from doing what we had planned!!
